Having cancer

I love this quote! Brilliant!

Also I am thrilled to hear your wife will not need chemo. Wow, that is just huge! Big hugs!

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Also I have some advice for your mother-in-law. (Long run up before advice, but hopefully the read is worth it. Lotsa typos below probably as I can’t type worth a crap on iPad) You can take it or leave it but it’s working with our own nightmare mother-in-law. My wife’s father died on his bike several years ago. He was hit by a car at night. A few years earlier Jen’s Mom had committed fraud wherein they lost their house and ability to drive a decent car - hence him biking (he loved it as it gave h more time away from her). Seeing a 62 year old thick guy bike to work to drive a semi is not quite the normal sight though. Needless to say it was traumatic there was no money, and Jen’s mom was already an alcholic and heavy smoker. This year they found a spot on her lung and were positive it was cancer. She had an operation to remove the lobe, but when they got in there found it was just fungus and just removed the spot.

So you’d think her Mom wouod fix her life. She was in hospital for 2 weeks nursing care for another 2 weeks and was off pills, alcohol, cigarettes for all that time though she did try to get a friend to bring her illegal contraband early on. Ever since she went home, and indeed she’s been this way her entire life but it’s been way worse now, every single thing is monumental. She complains and whines on end about everything from her health, to money, her bones creak a bit when she walks, she’s hungry and doesn’t want to cook, wants to be shuttled everywhere even high she can drive, omg it goes on and on and on.
Two weeks ago she came over, knowing my CF and asthma cannot handle heavy scents or perfumes and had this homeopathic oil covering her scar that was so potent it felt like it could catch fire at any moment. I hugged her, smiled, said how happy I was she was here, was going to make dinner, but was going to spend a bit of extra time in another room because the scent was a tad strong. She left in a huff, drove home with no exclamation and when my wife finally got a hold of her she was insulted that I had said anything. Jen reminded her Mom of my situation then she started crying… Literally like a3 year old who doesn’t his way in the grocery store. So loud I could hear it over the phone 10 feet away. It was self centered pity. When she was first told she did not have cancer she almost looked disappointed… She likes the attention. Mother-in-law syndrome can kind of be attenuated to that. Jen’s Mom is extreme and complains to no end. The latest thing is how out of breath she is, and how she just can’t do anything. Well right after she got out of the nursing care she was in the best shape of her life from the exercize. She looked and sounded AMAZING. But she was forced to do it. Now that she’s back home, she refuses to walk or do anything to help her health. We give her well thought out plans and ideas every single time she calls and there’s always some lame excuse as to why she won’t do this or that. So that leads up to what we do now…

Jen and I were both worn out from dealing with this. It is emotionally and at times physically exhausting as you’ve encountered and as my parents taught me growing up - the truth sometimes hurts, especially when it comes from a loved one - but they tell you because they love you. We now remind her that she’s shirked every suggestion and opportunity provided by the medical care and us, and this behavior reminds us of a child who keeps asking for help but doesn’t want it, just wants to complain. Last time she called wailing on the phone because she once again, was bemoaning that day she came over here and I had to be in another room for a bit. Jen told her she sounded like a baby. The crying stopped immediately and she said “Really?”. It was a revelation. She’d been doing this for her entire adult life (worse now) and apparently no one had every told her a simple fact about the way she came across. I’m guessing your mother in law loves you and with no one ever saying anything about how she comes across has never had a reality check. It might sting at first. When my Mom or Dad would tell me something I didn’t like to hear or agree with it took me a bit to see the wisdom of their words, and I would think your mother in law would do the same. As you can see, sometimes as people get much older, they become a bit more like children and sometimes have to be emotionally handled that way as well. Jen’s Mom has been night and day since then. She’s not perfect, and she still hasn’t bothered doing anything to help herself, but at least we don’t want to throw the phone out the window every time she calls.

Thanks jpinard for the advice and taking the time to type all that up on an iPad. We’ve done the “intervention” thing before with temporary results, but that’s no excuse for not trying again. It’s possible that we’ve just let our desire to avoid the inevitable drama dissuade us from taking any action that might potentially help.

However, all such crap must wait as we’ve had a bit of a setback.

This morning I drove my wife to the plastic surgeon for the first of the “expansions” that will stretch the muscle and flesh out to accommodate the (eventual) implants. However, there was one thing that we wanted to ask the doctor about first.

After a mastectomy, they give you one of those little metered tubes to blow into – like they had in “The Right Stuff”. You’re supposed to use the thing a few times every hour to make sure you are breathing deeply and not letting the chest-pain goad you into pneumonia. Like everything else, my wife has been using the thing religiously… and it doesn’t hurt that it’s kind of like a game where you try and break your previous “high score”.

Ms. Wisdom started out at a little over 1000 ml and topped out the other day at almost 2400 ml, which is pretty impressive even for a healthy person. However, over the last couple days, she’s been unable to top 2000, and just this morning she barely got to 1200 ml. Observant students of math may find her previous high and this new low meaningful, but I was not bright enough to see any pattern at the time.

Bear in mind that although she is having a hard time taking deep breaths, she is otherwise just fine - she and I are back to taking our mile-long dog walks in the evening, and we actually took advantage of the unseasonably warm Virginia weather last weekend to take a short walk through a local park for a few hours. As she’s had this breathing issue since Tuesday, we’ve been cutting back on the length of the walks, but she still moves fine.

Anyway, we make our way through the rain to the plastic surgeon’s office, but before they institute the procedure, we tell the doctor about the shortness of breath. She digs up a stethoscope from somewhere and listens to my wife’s breathing. Then she tells her assistant to call ahead to the ER closest to our house and tells us to hie hence. She’ll postpone the expansion until her lungs get fixed.

Yeah. Four hours later, the x-rays in the ER confirm what the plastic surgeon suspected: my wife’s right-side lung has collapsed.

A few hours after that, they’ve pierced Ms. Wisdom’s side through the ribs and have re-inflated her lung. I guess the plan is to keep it inflated until the organ seals itself up again… maybe two or three days of lying in the hospital bed. About six hours after that, they’ve gotten her ensconced in a room and hooked up to some pretty significant pain meds: the excess air in her torso is causing muscle spasms which (unfortunately) correspond with all the muscles weakened by the mastectomy, so she’s in much worse discomfort now than she was even after the much more major surgery from last week.

I just left her about an hour back. She’s sleeping and the care seems pretty good.

The doctors are pretty mystified as to why this might have happened. Nothing in the mastectomy procedure touched the lungs in any direct way, and Ms. Wisdom is (other than the cancer) in spectacular shape for a 46-year-old woman. They’re bringing in a specialist tomorrow, but apparently this might just be dumb luck: tall, thin people can sometimes spontaneously collapse a lung if they’re under stress. My wife is not ludicrously tall (not like my 6’2" daughter), but she’s a few inches above the Caucasian female average. Nor is she very skinny, though she looks great for a middle-aged mother of two. (Why she stays married to me is a deep mystery.)

Thanks, Spock.

Tin Wisdom - by the 4th paragraph my heart sank as I instantly thought of a collapsed lung or pneumonia. Yes it is easy to collapse a lung on a frail frame when surgery is nearby. It doesn’t always have to be caused by an actual penetration of the lung lining. A rough cough can do it. CF’ers have this happen quite a bit and the loss of lung function and shortness of breath is kinda scary. However, some people heal super fast, and for others, to be perfectly honest it can take a few weeks. If you’re doing OK financially, I would seriously suggest a fingertip pulse oximeter for the home. Nonin is the only brand our clinic will recommend and I will follow suit as i know how horrible the competition is. You can get one for under $40 but they do not go through rigorous lab testing like every Nonin device. I wouldn’t trust others no matter how many good reviews are posted. http://www.amazon.com/Nonin-Medical-Personal-Fingertip-Oximeter/dp/B00EUV1NIS/ref=sr_1_33?ie=UTF8&qid=1450420499&sr=8-33&keywords=pulse+oximeter This is the one I use, but when I got it they were $100. It’s a lot cheaper now. The battery runs out fairly quick (maybe a day under full load if used all day), but that’s because it is doing more scanning than cheaper varieties. Unless your pulse ox is attached to a lead acid battery you don’t want its primary selling point to be “Lasts longer than any other Oximeter!”
The peace of mind will be worth the money and will allow you to respond faster as you can just check willy nilly with no exertion necessary.

Tin, that’s rough. I hope your wife recovers soon. She sounds like a trooper though, hopefully soon she’s back to breaking her old records.

Well, fudge! Here’s hoping for speedy recovery for Ms. Wisdom so that you all can continue this part of the process.

Not a fun couple of days for Ms. Wisdom.

My wife was hospitalized after they inserted the chest-tube and as I mentioned it caused muscle spasms that were quite uncomfortable and prevented her from getting any meaningful sleep. They’d drug her up pretty well, but she didn’t react well to the narcotics and they would cause her a great deal of nausea. This meant that she swung from pain and a settled stomach to no pain but retching. No fun.

Later, they switched her to another narcotic that was less-effective but didn’t cause the nausea, and that helped.

The major issue was that the ER team that inserted the chest tube on Thursday apparently neglected to suture it into place, and Friday afternoon it just sort of popped out of the hole in her side. She was just sitting in bed, starting to doze off and her eyes shot open in panic as she felt it come out.

We called the nurse and they summoned a “rapid response team” who arranged for a proper operating room to be made available with an actual surgeon. So more drugs, ANOTHER hole in my wife’s ribs, and her stay at the hospital was extended by another day or so.

The new tube was both more secure and also better situated inside of her chest cavity, so there was less overall pain. Saturday afternoon an x-ray showed that the lung was fully inflated, so they switched off the active suction and switched it to maintaining the neutral pressure.

This morning they removed the tube. This means that she’s drugged to the nines along with some powerful anti-nausea stuff. Apparently they’ll be releasing her in the next few hours and right now I’m sitting next to her waiting for someone to come by and give me some post-release care instructions.

Ugh! Man, that is super rough, Mr. Wisdom. All the best to you and your wife and hope she is feeling better soon, safe and at home.

Jesus, having worked in hospitals and with doctors for a lot of the last 20 years, I am skittish about ever going. We have been lucky as a family and rarely had to go.

I hate she had to go through all of that nonsense. Hope she can get some rest, heal up and enjoy the holiday. Sending meditative, happy thoughts to you and yours.

Wow, that sounds horrible Tin. Hopefully the worst is behind you two. One good thing might be that you won’t have to spend the holiday in the hospital. I hope you have the best holiday you can. My thoughts and prayers are with you.

Tin Wisdom - did they talk to you about how she should cough? A hugged pillow can help cut down on the raw forces the lungs will bear of she’s has a lot of cughing to do.

No, but I’ll bring that up with the doctor next time I see him. Thanks.

Meh. No good – they took another x-ray just before they were going to discharge her, and they found that the lung is in the process of collapsing once again. So now they’ll pierce her side for a THIRD time, re-re-insert a chest tube, and we’re here for at least two more days.

Fuck.

Tin, that’s fucked up. Hang tough. One good thing is that she didn’t have to discover the collapsing on her own this time. Another is that she’ll be more accustomed to the narcotics this time around, so hopefully less nausea.

Ugh, I’m so sorry she’s going through this, TW. :(

Well, fuck. Double fuck, in fact.

That must be incredibly worrying and frustrating. I hope that they can determine what’s behind the lung issue, and get her back on the road of recovery, without any further setbacks.

That’s terrible. Sorry to hear your wife’s bad news. Hopefully this gets sorted, and you two can be home for Christmas.

So last night they moved the long-suffering Ms. Wisdom into a private room.

Not a moment too soon either. Previously, she shared a room with a 90-year-old woman who was eventually transferred into hospice care. This woman was a bit too loud (she was understandably hard of hearing), and occasionally she would mutter to herself, but overall she was a decent roommate.

But last night they moved a new woman in as a roommate. This one was a non-English speaker, though I couldn’t quite tell what language she was speaking - Arabic or Farsi maybe; almost certainly something from the Middle East. However, she was well and truly deep into dementia: every two minutes or so she would start babbling to no one at all, or (worse) start yelling as if something was really troubling her, or (worse still) clapping and singing only to squawk in pain and fall silent. Needless to say, it was a rough night where my wife didn’t get much sleep.

I don’t know if it was my daily requests to move my wife into a better room, the fact that Ms. Wisdom is a generally nice person and has made friends will all the nurses, or simply the realization that since she’s likely to be there for a few more weeks with twice-daily chest x-rays it simply made their jobs easier. But whatever the reason, I am very pleased - we’ll be celebrating Xmas in the hospital and the private room will make that less unpleasant than it would have been otherwise. Hmm… time to crowd-source this a bit. Another thread, I reckon.

That’s all I got. I have noticed that hugging people…really, sincerely hugging them… has exchanged some magic of humanity that has helped me get through as of late. Historically, I have just been a perfunctory hugger. So I am hugging the crap out of friends and family this season even if they are people with which I traditionally shake hands or side hug. If I were in your town, Tin, I would hug the shit out of you too whether you wanted it or not.

Living in the Southeast U.S., this goes over better than in some areas. Some friends will most likely be weirded out, but I don’t care.