Having cancer

No. Fight it. They screwed up. If the hospital has a billing issue it should not be with you, it should be with them. You have everything documented. Each bill, send a copy to billing group, care group, and insurance. You may be able to get the billing waived with persistence, or a special addendum if you decide to refuse to pay and it goes to credit report. This is the same crap these companies pull over and over and over again and expect people to just roll over. I would also write a letter to your congressman and notify said parties you are doing so. Your congressman may be a total tool and useless like ours is, (though our senators are fantastic), but it can’t hurt. Don’t pay for their mistakes.

if you made phone calls, you have a call log, and if you wrote emails, you have that as proof. Don’t roll over. If you don’t have time, I’ll even write up all the correspondence for you if you’d like. I’ve dealt with this crap so much.

Thanks, JP. Once I cool down a little I’ll go back and see what kind of evidence I have.

Found out this week that a friend has a malignant tumor in his bowels so large it’s constipating him, waiting to hear back if it’s spread or not. He’s 40, married, has a 7yo son. One of the genuinely nicest souls I’ve ever met. A mutual friend called to tell me, swear I couldn’t breathe for a minute when I heard the news.

Fuck cancer.

Sadly, it doesn’t sound like a hospital billing issue here. It kind of seems like an issue with an HR person or HR manager not understanding that some insurance plans run on their own calendars, and mistaking the policy calendar for the fiscal or yearly calendar. Which totally sucks for Adam.

Sorry to hear about your friend, John.

A close friend of mine just found out she has cancer that has spread throughout her abdomen and has surgery next week to try to remove what they can and then most likely rounds of chemo after. She is about the same age as your friend and has twin boys that are 7 or so too. I can’t even imagine what she is feeling right now.

Indeed… fuck cancer!

That’s awful. Even when it’s a total stranger, you hate hearing stories like that.

Additional scans/tests done and they don’t think it spread beyond that one tumor. So now chemo to shrink it a bit and then surgery, which they also think can be done without causing him future digestive issues.

Wow, best of luck to that fellow. I lost 12cm of my colon to a pre-cancerous polyp, I’d have truly felt horrified to see that it had gone that far.

Well that’s some good news at least.

This Friday my wife will undergo her 20th chemo treatment. We have settled into sort of a routine as we have processed the fact that some sort of treatment is indefinite. My wife continues to operate with good spirits and a good attitude. The biggest issue is simply fatigue. The nausea is manageable in the 1st two days after the chemo (Taxol) she is on and then after that life entails saving up energy to do something a couple hours here or there and maybe walk with her friends and eat lunch. She has treatments 3 weeks on and one week off. The fatigue doesn’t subside that noticeably with the week off, but she does avoid the need to be tied to the house for that weekend after the Friday treatment.

So, for now, about 10 months out from her re-diagnosis and one failed 3-month course of treatment, I guess everyone in our 4 person and extended family is successfully “Living with Cancer”. It’s about as good as can be expected considering, but as far as any sort of normal existence as a married couple in our 40s with 2 kids, it is still pretty shitty many days. I just can’t think of it that way because there is no changing it.

I thought I would post a quick update on my wife. Partially because it’s been a while, and partially because of a little adventure yesterday.

For the past few weeks, my wife has been getting her “expanders” inflated preparatory to having her final breast prosthetic inserted in April. This is a slow process in which we visit the plastic surgeon’s office each week and they inject 60ccs of saline solution into each breast. For reference, 60 cubic centimeters is about a quarter-cup (volume, not cup-size). The idea is to gradually stretch the skin and - much more importantly - the blood vessels so that when the actual prosthetics are installed, her skin will stay healthy.

It’s been a relatively fun experience for us - she takes a muscle-relaxant before each appointment, which means I take a half-day off work to drive her there and back. Sometimes we grab lunch afterwards. “Fake-boobie dates,” we call them. But not in public. Except here, I guess. The “expander” implants are not shaped to look like real breasts, so they basically look like hemispheres just below her skin. And since the plastic surgeons has to “over-expand” the skin, my wife is now at a point where she is larger than she will be with the final implants. At this point they’re the size of half-coconuts and she looks utterly ridiculous… like a poorly-manufactured Barbie doll or the fakest-looking porn starlett you’ve ever seen.

But overall, that part of the recovery is going well. Ms. Wisdom is back at work and doing fine. She’s started her hormone treatment and none of the terrible side-effects have come to pass. So it’s all pretty good.

HOWEVER… Sunday night, her lung collapsed once again.

We weren’t really sure if that was what happened at first. When she complained about shortness of breath, I ran upstairs and grabbed the blood-oxygen sensor that Jpiniard suggested we buy upthread (post #670), and it said that she was at 97%… far from a low level. We talked about going in to the ER, but we weren’t really sure that it was a collapse and our previous experience in the hospital (a stay of neigh on two weeks) was so terrible that my wife was in tears even considering it. We elected to sleep on it.

The next morning, I ran out in the snow and bought a cheap stethoscope, and that pretty much confirmed our amateur diagnosis. I had woken her up a couple times in the night to use the sensor (thanks again Jpiniard!) and each time she was in the upper 90s, as she was the next day, so we weren’t truly worried, but… hey it was a collapsed lung! That’s the kind of thing you go to the ER for, you know?

So Ms. Wisdom showered and shaved her legs and carefully packed for about a week with all her toiletries and whatnot. Then we set out for the ER.

This time, we decided NOT to go to the hospital five minutes from our house. The last experience was terrible; they botched a couple procedures; and honestly I haven’t ruled out suing them… the only reason I haven’t yet is that my wife’s surgery for the implants is going to be held there and I am a bit wary of suing people who are about to cut my wife open.

Instead, we drove about 45 minutes away to Fairfax Hospital, which has the only pulmonary department in the area and have a couple thoracic surgeons on-staff.

All the way, driving through the snow, I was psyching myself up to fight with the ER doctors: this time I didn’t want an ER doctor to do the surgery that inserted the suction tube; I wanted a “proper” thoracic surgeon to do the job and I was willing to threaten and cajole and demand to see hospital administrators or whatever to make sure that happened. I’m a big guy with (slightly) more muscles than flab, and I was prepared to intimidate if necessary.

Not necessary. The ER doctors called in their pulmonologists immediately and we ended up getting seen by the head of the thoracic surgery department. He asked a bunch of questions, including what happened over at the other hospital. There was a lot of head-shaking and eye rolling. “It’s like you were in some third-world country!” he exclaimed at one point.

Anyway, he went over three options for us, but the one that he recommended was to go home and call him in a week. Yeah.

See, it turns out that in healthy people, collapsed lungs tend to heal on their own, and if you’ve ever had a collapsed lung the chances of it recurring are pretty good… like 60%. My wife’s X-ray showed that it was about a third of the way collapsed. He checked her blood-oxygen levels, saw that it was still in the 90s, and said that unless she was at high risk of losing the other one, that was not dangerous at all. His recommendation was to go home, return to work, continue a “regular” level of activity - including going to the gym - and have another X-ray done in a week. If there had been no improvement, then we’d talk about surgery or chest-tubes at that time.

So, somewhat bewildered, we got back in the car and drove home through the freezing rain, and Ms. Wisdom unpacked all of her bags. Overall, it was a pretty pleasant experience. And I’m now more certain than ever that I need to call a lawyer about our previous visit.

Yeah, that’s crazy. Sue! But not until after the upcoming operation, as you said.

Even as someone with a strong visceral dislike for overly litigious culture, especially when talking medical care, I agree.

Tin glad to hear things are going mostly ok. Obviously the collapsed lung is a bit unnerving, but it sounds like you got better care. Hopefully you won’t require a second trip in a week!

That’s the best kind of crisis: one where someone in the know tells you to go home and carry on as usual!

-Tom

Thanks for the update and story Tin. Glad it was exponentially pleasanter. :)

Yeah, I’ve never had anything but good experiences in the few times I’ve had to avail myself or a friend or family member of Fairfax Hospital. Really top flight operation there.

We went in to see the thoracic surgeon this morning.Ms. Wisdom’s lung has partially healed itself… it’s probably inflated to fill 2/3rds of the cavity.

The surgeon said that if left alone, it would probably re-inflate to its full volume in another two weeks, but that there would be a more-than-even odds that it would spontaneously collapse again sometime in the future… and that each time it collapses it makes a future collapse even more likely.

The other option is surgery. They’ll cut a couple holes in my wife’s chest cavity and use waldo-arms to go in and abrade the lining of her thoracic cavity, then force the lung to re-inflate and stick to the wall. Then, the abrasions will heal and form scar tissue, which will fuse with the outside of the lung, acting like glue. Once that has fully healed (a week to be "“functionally healed” and three to five months for the pain to go away completely), the risk of relapse is less than 1%.

Ms. Wisdom didn’t like the idea of having to worry about collapsing her lung every time she sneezes hard, so she opted for the surgery, which is scheduled for this Friday. She’ll be in the hospital (Fairfax this time) for two nights and should be home Sunday.

Hope things go great!

Good luck to you and her, man.

Best of luck to you and your family, Tin!

Good luck to you and Mrs. Wisdom! Sounds like going to Fairfax Hospital has been a huge improvement!

Good luck to you and Mrs. Wisdom, Tin! You all have been through alot for sure.