Having cancer

Tyjenks, your article puts me in mind of a similar situation in my wife’s family, she lost a family member recently to ALS and it was hard seeing them grapple with this degenerative disease, knowing they had to hold on to hope in order to keep going, to keep fighting, while the brutal reality was that the prognosis was terminal. It was just a matter of time. So when discussing things you had to work so hard to try to keep it light, to buoy them or at least help them buoy themselves with a positive attitude.

I was not a caregiver but I often thought about this - as a family member, one of the many tent poles of support, what do we owe the sick and dying? Is it truth, knowing that this could strip away any hope they have? Or do we maintain a fiction, to try to allow them to believe that maybe things will be different, maybe they’ll beat the odds? I don’t have any answers either, I guess we all have to make that call for ourselves.

Thanks for the update and sharing your moving piece. It is refreshing (for lack of a better word) to see a piece that acknowledges you are not trying to offer a ‘salve’ or ‘happy ending.’

We take our daughter to college in two weeks, and it will bring back the death of our son in a new way. We’ll have an empty nest when we shouldn’t have (he was three years younger than our daughter). In the same way, I’m sure, taking your oldest to college will be another milestone that heightens your wife’s absence.

I can’t believe it has been two years for you. I am glad you stopped by.

@Tman I think you are referring to Tom’s article that he wrote called: What Do You Say To Someone With Cancer, which can be found here.

@CraigM You are welcome and thank you.

@Tman That was Tom as marquac said. My suggestion is to bring up specific things you want to know about and then let them talk about what they want by letting them know you are there for that or you are there to drink a beer and talk shit if they would prefer. I am glad it helped,

@divedivedive There are no good answers other than being there and being understanding. I try to avoid the generic responses, but I still fall prey to them on occasion. Know that most of the time people aren’t in their heads sticking your voodoo doll pins. It’s the incessant generic platitudes that begin to seem insincere. Fumbling around and not knowing what to say is better. I didn’t want anyone to be discomfited, but as the days wore on, raw honesty would slip out and it had to shock some and/or hurt feelings, but you get to a point where you are laser focused on simply making it through each day without exploding and your armor starts to simply fall away. It does also depend on the person, but as pressure mounted, everyone got unfettered Tyler.

@tylertoo Thanks much man and thanks again for asking. I saw your post when you made it, but some days I still just only want to communicate in certain ways. Blathering on Facebook, unfortunately, has become a crutch as I felt no need to carry on a conversation and that makes it easier. I dump my brain into a post and people could commiserate or unfollow me as they saw fit depending on their desire for agonizing posts or cat pics. Occasionally I continue my thoughts or I walk away from it as my catharsis ends. I still grieve for you as well. Though I have been through a lot, it is hard for me to conceive through what you have been.

It will be hard on my 13 year old, but that was another factor in breaking u with my girlfriend. I needed to be at home more. Yes, she will need to adjust to her sister being gone, but she will need access to me and that had been reduced by going out. I also realize I cannot give up my own life, but I need more of a balance that includes her more. My oldest has done amazingly well. She is ready to spread her wings and is far more confident and independent than her mother or I were. She has the normal nerves with such a change, but is ready to go. I am proud of them both.

Thanks again for any compliments on the writing. Mostly it pours out. I re-read things a few times and certainly did that piece more than most things, but the thoughts come out pretty well formed when they do come. The rest of the time, they are locked away to avoid the related anguish.

Enough about me. I hope all of you struggling with early or late stages of similar circumstances or the aftermath are surviving. Know the people suffering desire what we still have and that is relatively good health. I take that for granted too often and should not. Your loved ones would want you to go on and live your life as fully as possible where they maybe cannot. I know my wife wanted that for me. It’s not always possible as obstacles abound and there are going to be days when you feel you fail at everything, but I am trying to hold onto the cliche that you get a new try each day. Living that way consistently is going to take a bit longer, though.

Hugs to everyone. Hugs are good I have found. If you and those close to you are unopposed, hug each other more.

Of all the things you’ve written, the self doubt, the worry about did you say and do the right thing for your wife and kids as the end approached, the stress and putting on the brave face. I can not say if the choices you made were the best, or were right. But I can say this, you’ve done good. Father to father, what you say about your daughters speaks volumes.

You’re a good father, and your daughters are lucky for you and it shows. Best of luck to your oldest.

You are wrong! You most definitely are a writer! Even though I already knew much of your story from this thread, it was still a very emotional read. Thanks a lot for sharing. And best wishes to you and your family.

I’ve always thought Tyler did an outstanding job expressing his thoughts and feelings over the years. I finally got around to reading this latest piece (been a crazy week) and read chunks of it out loud to my wife in the other room, my voice cracking a few times as my throat constricted.

So a former co-worker’s daughter passed away two weeks ago after being diagnosed with cancer at 4 years old. She fought bravely for a year but it spread and there was nothing more they could do. They had a celebration of her life this weekend and it was so hard to get through. It hits me especially hard as we have two girls of our own, one the same age. I know others here have had similarly awful experiences hit their own families and I’m just in awe at the strength and fortitude it takes to make it through. I just felt broken seeing pictures of her way-too-short life shown, knowing that we’d eventually hit the ones where she lost her hair and an abrupt end to the incredibly huge smiles up to that point.

They threw the party afterwards that she was going to have when she finally beat it, with all her various special requests for her little friends. Ponies to ride, ice cream, Elsa, drawing, play-doh, and everything a little girl would want. I hope seeing all of our kids enjoying all her favorite things somehow helped her mom & dad make some sense of it all or healing or whatever else it takes to somehow get through that and stay strong for their daughter’s little brother.

Several here have, but what you described is I think extraordinarily difficult. Condolences to all, may they find peace.

Ouch, that hit like getting a kick to the gut. So awful. Poor girl and poor family that has to live through losing her.

That poor family.

What was really amazing to see was the large amount of support from random people on the internet, either money or just words of encouragement. He kept a journal on CaringBridge for her, to keep everyone updated on her progress. Reminds me that there’s still a lot of good out there, even with all the shitty things that happen in this world. They both had pretty good jobs, good insurance, lots of local support, etc, but there are way too many people going through this that don’t have those type of resources available. So awful, I really feel for them all.

Silver linings. I’m glad they exist.

Terrible…should never have to bury a child.

One of our fishermen who we buy fish from in the summer here at my fishing company just lost his 35 year old daughter. The memorial was last weekend. He came in to the office today to pick up some fish and we could tell he was a bit dazed…felt so bad for him.

The lady who owns the agency that got my wife her new job last year just died from breast cancer…hit my wife hard.

Just found out I have Lymphoma so my wife is doubly depressed now…cant shake her sadness and cries every day…the doc told her my issue would take years and years to do much to me and there are more and more therapies keeping people alive longer with my FL but that’s no consolation to her…it’s so hard nowadays with everyone seemingly being so affected by the big C.

Thank you for sharing that story, both terrible and uplifting.

Wow, so sorry to hear that. Best of luck to you.

Thanks. My step father has had CLL for 25 years with no treatments. I began eating the same naturopathic cereal recipe he got from one of the naturopathic oncologists he saw. Worked for him…if anything, it’s super healthy and better than the other crap I’ve been eating all these years so it cant hurt.

He got his issue the same age as me…very odd as we used to landscape together on his building projects and used a lot of chemicals back then.

Oh well, another chronic illness I gotta deal with…just gotta push on and enjoy the crap out of life!

Hell yeah. You fight that shit and you live each and every day to the fullest. Best wishes, man, I’m pulling for you.

Please, please don’t forgo treatment just because someone you know ended up being an outlier. Though I’m happy for him, taking that route can be a huge risk and most in that situation would have passed away by now. I wish you all the best :)

Thanks…I’m still very low grade and have a Lymphoma Specialist who is heavily into research and keeping up on the latest and newest treatments so I’m definitely not going to go against his treatment plan once I…Or, IF I ever need it!

Thanks everyone…living life to the fullest!

Good luck man. You’ve got the right attitude. I wish you all the best.